tag:blogger.com,1999:blog-69942299626544912902024-03-05T20:43:56.946-07:00Welcome To Our Crazy, Happy Life!Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.comBlogger455125tag:blogger.com,1999:blog-6994229962654491290.post-53338146246096779382015-03-14T12:54:00.001-06:002015-03-14T12:54:12.092-06:00Hadlee's pre-concert show<iframe allowfullscreen="" frameborder="0" height="270" src="https://www.youtube.com/embed/NteVCSfRkkE" width="480"></iframe><br /><br />
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Have to love Hadlee's enthusiasm. She was rocking out to the background music before Sydney's Glee performance. Just love this little girl.Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com0tag:blogger.com,1999:blog-6994229962654491290.post-26944704982048782082015-03-14T12:06:00.001-06:002015-03-14T12:06:33.048-06:00Sydney's Glee Club of Lip are moving<iframe allowfullscreen="" frameborder="0" height="270" src="https://www.youtube.com/embed/MHwsxsyQtZ4" width="480"></iframe><br /><br />
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This is my favorite of the 2 performances. Just smiling the whole time.Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com0tag:blogger.com,1999:blog-6994229962654491290.post-86700120428958816702015-03-14T10:02:00.001-06:002015-03-14T10:02:26.870-06:00Sydney's Glee Club of Brave<iframe allowfullscreen="" frameborder="0" height="270" src="https://www.youtube.com/embed/HNApRAZHUw0" width="480"></iframe><br /><br />
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My little girl sure is growing up quickly. So proud of her.Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com0tag:blogger.com,1999:blog-6994229962654491290.post-46556664019972321212014-07-06T10:32:00.001-06:002014-07-06T10:34:52.327-06:00Sydney and Type 1 Diabetes 2014<div class="separator" style="clear: both; text-align: center;">
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Here is Sydney's updated 2014 Type 1 video. For any of those who are interested, the JDRF walk in Idaho Falls will be held on September 6 at Snake River Landing. For those who are interested in donating you can click on the following link to go to the JDRF page. You can then search by team name for Sydney's Soldiers. <a href="http://www2.jdrf.org/site/PageServer?pagename=walk_participant_search">www2.jdrf.org/site/PageServer?pagename=walk_participant_search</a><br />
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Thank you to everyone who has helped to support our family and also how has supported the research to help find a cure for Type 1 Diabetes.Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com0tag:blogger.com,1999:blog-6994229962654491290.post-26613020621428758392014-04-07T20:06:00.000-06:002014-04-07T20:06:12.048-06:00Revamping Syd's VideoWell, I decided that after 5 years, Syd's Type 1 video probably needed revamping. And so I am setting out to update the video and make it a little more current. I hope to just do some photo changes and add a couple new videos. Can't wait to post the new video soon. If any of you have any suggestions of things to change, please let me know.Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com0tag:blogger.com,1999:blog-6994229962654491290.post-56859516715268033892014-02-12T17:29:00.001-07:002014-02-12T17:29:40.895-07:00The quarterly A1C, aka the good mommy and daddy reportFor anyone new to the world of diabetes, you may have heard of the term A1C and wondered why it was important to get since we test blood sugars multiple times everyday. Isn't that good enough to know if my child's blood sugars are staying in a healthy range? Not necessarily. <br />
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Let's say that you check your child's blood sugars consistently each day at the same time, during those times they are always within or near your target range so you figure everything is going great. If your child is on an insulin pump you know that basal rates vary dependent upon the time of day. So what about those in between times when your not checking their sugars? What's really happening during that time? An A1C can help to answer that question.<br />
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What the A1C does is average your child's blood sugar over time. Our bodies replace our blood cells about every 3 months. During that time sugars get stuck to the blood cells. High blood sugars result in more sugar sticking to the cells, low blood sugars means less sugar sticks to the cells. The A1C gives you an average of what a person's blood sugar levels were over the course of about 3 months. This can be very useful information for a parent of a type 1 child. Although we try to avoid low blood sugars, which can have immediate consequences, we also want to avoid high blood sugars over time which can lead to long term damages to our children's health.<br />
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A target A1C for most kids is between 7-8. This translates into an average blood sugar between 170 to 205, dependent on the chart your reading and the lab results. Keeping your child's blood sugar within the target range will help to reduce the risk of long term damage. It's also a good idea to speak with your doctor or diabetes educator on what the results mean individually. If your child wears a pump, the doctor or educator can usually download your pumps history to give an overall picture of the results. Was the A1C good because your child had lots of really low readings to counteract the high ones, or did they actually have a really well averaged quarter. It also allows for your doctor to make possible corrections to your child's basal rates if necessary.<br />
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Overall the A1C is a very important part of managing your child's diabetes. Although it might not always be the first thing on your mind to do, make sure your write it on the calendar so you will remember.<br />
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That being said I am happy to report that after several not so great numbers, 8's and 9's, Syd's latest numbers came in at 7.3%. We couldn't ask for a better number. I think her mom in heaven has been working hard to keep her little girl healthy.<br />
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May all of you have similarly happy results. Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com2tag:blogger.com,1999:blog-6994229962654491290.post-73286897544606751082014-01-19T11:22:00.000-07:002014-01-19T11:22:31.108-07:003 months laterTomorrow will mark 3 months since the passing of Shamae. While I had a little time I wanted to update you on the family.<br />
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Overall we are all doing well. The girls miss their mom and express that sometimes, but on the whole are doing very well in continuing on with life.<br />
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Hadlee is now 3 years old. She is active as ever. She loves to be doing whatever the older sisters are doing which sometimes drives the older ones crazy. If I had a nickel every time I heard "Hadlee is bugging us Dad" I would be able to retire now. She likes going to daycare most days. I am glad that it will only be a temporary situation and that she will be able to be at home come the summer time.<br />
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Morgan is 8. She is very excited to be baptized coming up in February. She is very sweet, but also has her well known feisty streak. She is doing great in school. She is also now in piano and gym. She loves doing both and does very well in her classes. Her favorite thing now is anything Disney Frozen. She knows all the songs by heart. It is very sweet when her and Syd sing together. They are very good.<br />
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Sydney is 10. I have to reign her in on how boy crazy she is on a regular basis. She loves reading all the latest teen gossip magazines and watching internet videos of all her favorite teen stars. She is doing great in school, except the occasional struggles with math. I'm investing early in large stocks of ammunition to keep all the little boys away. On a normal day there is at least 2-3 boys fighting for her affection. She is also in piano and gym and loves to do both.<br />
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I myself am also doing very well. I manage to get the kids fed, dressed, hair done, and off to school on time each day. As well as making sure the house stays picked up. Well as best as you can with 3 girls running around the place. I miss Shamae at times, for the woman she use to be before her health issues, but also take comfort in the fact that she no longer has to be in pain or live in a body that doesn't do what she wanted it to do. Being a single Dad can be a bit of a challenge sometimes, but I am very happy to have my girls. I also know that someday I won't have to do it alone and that the girls will have someone they can look to as a mother. The most important thing is to be happy with the moment we live in and to find those things that will lead to continuing and greater happiness.<br />
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Thank you for all the kindness we have been shown. It has help to lift our family and to continue on. Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com3tag:blogger.com,1999:blog-6994229962654491290.post-931365366332372822014-01-19T10:58:00.001-07:002014-01-19T10:58:52.312-07:00Honoring Shamae. Aberdeen Girls Basketball.The Aberdeen Girls Basketball team will be presenting a plaque to the girls and I on Jan. 22 at 6:30 P.M. at the Aberdeen High School Gym. I just wanted everyone to know about this event. I really think it is sweet of them that they are paying tribute to Shamae. She was an amazing team member back in high school and was able to touch so many people. I would invite anyone in the area who would like to attend to make sure they come.Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com0tag:blogger.com,1999:blog-6994229962654491290.post-31565556924727330902013-12-22T09:37:00.001-07:002013-12-22T09:37:46.444-07:00It wasn't until this morning that I remembered that Shamae had written a poem for her grandma Ruth several years ago following the passing of you grandpa Keith. I realized that now would be a great time to post this on behalf of Shamae as it applies to her now as well.<br />
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<div align="center" class="MsoNormal" style="margin-bottom: 12.0pt; text-align: center;">
<strong><span style="font-family: "Lucida Calligraphy"; font-size: 26.0pt; mso-bidi-font-style: italic;">Together for Christmas </span></strong><strong><span style="font-family: "Lucida Calligraphy"; font-size: 14.0pt; mso-bidi-font-style: italic;">©</span></strong><strong><span style="font-family: "Lucida Calligraphy"; font-size: 26.0pt; mso-bidi-font-style: italic;"><o:p></o:p></span></strong></div>
<div align="center" class="MsoNormal" style="margin-bottom: 12.0pt; text-align: center;">
<strong><span style="font-family: "Book Antiqua","serif"; mso-bidi-font-style: italic;">The tears
in your eyes I know you can’t hide, </span></strong><b><span style="font-family: "Book Antiqua","serif"; mso-bidi-font-style: italic;"><br />
<strong>In front of our
family, I've seen how you've tried. </strong><br />
<strong>You want to be strong,
but the ache is too great. </strong><br />
<strong>When I passed on, I
saw your heart break. </strong><br />
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<strong>But please don’t cry,
no don’t shed a tear. </strong><br />
<strong>You don’t understand;
the plan is not clear. </strong><br />
<strong>You see the side where
I’m dead and gone. </strong><br />
<strong>But don’t you worry,
it won’t be long, </strong><br />
<strong>Till your eyes are
opened and you see the light-- </strong><br />
<strong>You see, I’m in Heaven
where it stays very bright. </strong><br />
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<strong>Christmas is coming
and I know you are scared, </strong><br />
<strong>Because this is a
holiday we always have shared. </strong><br />
<strong>I miss you too and in
my heart there’s an ache, </strong><br />
<strong>Because I won’t be
around to make this year great.</strong><br />
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<strong>But you’ll be
surrounded by family and friends, </strong><br />
<strong>Who love you dearly and
will be there to lend, </strong><br />
<strong>A shoulder to cry on
or just share a smile. </strong><br />
<strong>They will be with you
and stay for a while. </strong><br />
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<strong>But I want you to know
that I’ll also be there, </strong><br />
<strong>This holiday season we
still get to share. </strong><br />
<strong>Although I know you
cannot see, </strong><br />
<strong>I'll be sitting beside
you with our family. </strong><br />
<strong>My hands on your
shoulders, I’ll give you a squeeze, </strong><br />
<strong>As I sit beside you
around our Christmas tree. </strong><br />
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<strong>So please don’t cry,
no don’t shed a tear, </strong><br />
<strong>Because I will be with
you for Christmas this year.</strong></span></b><b><span style="font-family: "Book Antiqua","serif";"><o:p></o:p></span></b></div>
<div align="right" class="MsoNormal" style="text-align: right;">
<strong><span style="font-family: "Bradley Hand ITC"; mso-bidi-font-style: italic;">By: Shamae
Lyon</span></strong></div>
Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com2tag:blogger.com,1999:blog-6994229962654491290.post-48827439194971310042013-12-15T09:56:00.001-07:002013-12-15T09:56:53.383-07:00Merry ChristmasIt's Christmas time. Wishing all of you and your families a happy and safe season. And for all our many diabetic friends out there, here's wishing the holidays bring you normal blood sugars and healthy children.<br />
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<br />Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com2tag:blogger.com,1999:blog-6994229962654491290.post-76680084054084849492013-11-19T16:01:00.000-07:002013-11-19T16:01:41.157-07:00Well, tomorrow it will officially be 1 month since Shamae passed away. For all of those who have been following her blog, I want to thank you all for the support and friendship that you have shown her and our family over the years. I am not even close to the writer that Shamae was, but I do plan to continue to keep her blog going and try and post at least once a month or so.<br />
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She was a big supporter of the type 1 community and a great resource. Although I feel I do a good job taking care of Sydney, I don't know that I will be able to fill the shoes that she left in that area. If you have things that you think would be good to link or post please let me know. I still want people to be able to come and feel connected.<br />
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Thanks again for all of the love and support that you have shown us this last month.Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com9tag:blogger.com,1999:blog-6994229962654491290.post-68546036516228098642013-01-12T11:22:00.001-07:002013-01-12T11:24:16.870-07:00Facing Another Diagnosis--The eye of the hurricane <br />
It hasn't been too big a secret that our family has been put through the ringer again and again. I don't know why yet but I have to have faith that someday all the heartache and silent tears will be accounted for and I will understand them. But, for now, I weep privately and have almost trained my eyes to never water in public. Public is an ambiguous term of people who just don't get it. They may want to. They may be your best friends and want to help but there comes a time when even they can't know the tumult that rocks your world.<br />
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Since Sydney's dx on <a href="http://www.crazy-happy-life.blogspot.com/2008/02/our-long-week-in-hospital.html" target="_blank">Feb. 25, 2008</a>, we live in a hurricane zone. The hurricane is composed in insulin to carb ratios. Hurricanes based on low blood sugars that cause seizures. Hurricanes so unpredictable that we can log a very high 450 number in a daughter filling up with toxins from DKA and we pump insulin into her in order to rid her body of the deadly toxins, we fight and fight to pull her back from the brink of DKA and eventual death only to have another hurricane swing in unannounced The next time we might be holding Sydney prisoner to severe lows where she shakes uncontrollably. She cries. She hurts. She has rapid breathing and clammy skin. Often an uncomfortable tachycardia heart rate She is now facing death from low blood sugar. SO we fight and fight. We use all the knowledge we have to fight her off he lows. Away from the seizures and potential brain damage. We battle this damn hurricane all the time. Sometimes the hurricane calms and feels more like a breezy day at the beach and out then of nowhere the hurricane comes in and tries to claim Syd's life. We try to always be on our toes. We try to always watch because everything is so unpredictable.<br />
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Morgan has been part of a trial study for siblings of Type 1 Diabetics. It measures the antibodies in her blood. We shouldn't have any. The presence of antibodies could mean an autoimmune response has been triggered and the body isn't producing insulin properly. The body is killing off islet cells in the pancreas and slowly blood sugars rise until a diagnosis is made. It's a tough diagnosis. There is so much to learn about this disease. We have been at it for nearly 5 years and I don't know everything I need to know. For whatever reason, Morgan's body is showing symptoms of developing this disease. We randomly check her blood sugars and they have been increasing. Fasting blood sugars should be under 100 and hers haven't been under 100 in a while. The past couple months we have really backed down on checking her sugar because she hasn't been diagnosed and if, eventually, she is diagnosed, she will be checking it often enough on her own.<br />
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So we wait. We watch. We are trying to keep track of symptoms but there isn't anything we can do to stop it if it is a pending diagnosis. Every year we raise money for JDRF and hopefully at a future date...sooner rather than later...we can find a way to stop or reverse islet cell damage. In the meantime, we have our hurricane and we do our best to manage it. I realize this post talks about the emotional toll of this disease and at a further date I might make a post about the financial toll of this disease. :) Thanks for reading.<br />
Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com9tag:blogger.com,1999:blog-6994229962654491290.post-30856510423323368082013-01-12T11:00:00.001-07:002013-01-12T11:00:32.306-07:00Do you make promises you can't keep?<br />
She is only 9. She lives with an awful, complicated, expensive, never-ending disease. Because she lives it, so do we. She knows the dangers of her disease. She knows what can happen. She knows the complications because we decided we wanted her to be aware so she can do her best to manage her disease...even though it made her grow up too fast. Her disease hurts. There is NOT an area of her or our life that is not affected by this disease. This disease kills. It is a disease that takes and takes and takes.<br />
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This past year our nation has been plagued with evil people taking the lives of innocent bystanders. Most recently, the Newtown, CT school shooting where a gunman attacked the school with an assault rifle, killing 20 kids and 6 teachers. It was gruesome and horrible. No parent expects that after they take their kids to school, that is the last time they will see them. We chose to tell our girls what happened because of one little survivor's story. A little girl was in a class where she was the sole survivor because she played dead. I can't imagine how horrible it was but her wisdom could help someone in the future. <br />
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Everyone handles trauma in different ways and I don't think there is 1 right way to handle trauma and grief but I think talking about it is a good first step. If you are struggling with this situation then maybe talking is a good option. I guess if you want to try and see a silver lining it would be that, if going through a trauma, I can imagine to know a nation is supporting and thinking and praying for you would help console, if only a little.<br />
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Anyway, back to my promise. In the past month 2 kids have lost their lives to Type 1 Diabetes. Sydney overheard Loren and I talking about these tragedies. She came over to me and hugged me and said, "Promise me that will never happen to me." It seems like a simple thing but in that moment it was hard to promise something I couldn't guarantee. I re-explained everything we do every day and every night to ensure this will never happen to her. It seemed to work and she went off to play. But it's been on my mind ever since. Every year diligent parents lose kids to this disease. At some point we just have to trust ourselves and that we are doing everything we can and leave the rest up to fate. God bless. <br />
Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com2tag:blogger.com,1999:blog-6994229962654491290.post-89299995025325810382012-11-02T11:33:00.000-06:002012-11-02T12:41:34.179-06:00Are YOU a holiday hypocrite too? :) <span style="background-color: white;"><span style="color: #333333; font-family: Arial, Helvetica, sans-serif;"><b><span style="line-height: 20.78333282470703px;">As parents we spend our time trying to teach our children the difference between right and wrong. We </span><span style="line-height: 20.766666412353516px;">sneak</span><span style="line-height: 20.78333282470703px;"> vegetables in their food and we make sure they drink plenty of milk. We give them fresh fruit as an alternative to sugary sweets. As parents we tuck our kids into bed each night with a story, song, prayer and a kiss. We make sure they are wearing warm jammies in the winter and cool jammies in the summer. We give them vitamins. We teach them to lace up their shoes so they don't trip and fall. </span></b></span></span><br />
<b><span style="font-family: Arial, Helvetica, sans-serif;"><span style="background-color: white; color: #333333; line-height: 20.78333282470703px;"></span><br style="background-color: white; color: #333333; line-height: 20.78333282470703px;" /></span></b>
<span style="background-color: white;"><span style="color: #333333; font-family: Arial, Helvetica, sans-serif;"><b><span style="line-height: 20.78333282470703px;">We teach them "A clean house is a happy house. So clean up your room to make it happy!" (They have yet to make the connection that both "room" & "house" are code for "mom.") We search through their Halloween candy vigorously--hoping to find any tainted candy--after all we only want our children to be safe. That reason & that reason alone explain the Halloween Candy Tax we impose on Halloween. ;) wink wink. We teach our children to think for themselves because "If all your friends jumped off a bridge, would you?" We teach them lessons in humility and altruism. We, of course, want our children turning out better than we did. We want to learn from the mistakes our parents made. We </span><span style="line-height: 20.766666412353516px;">genuinely</span><span style="line-height: 20.78333282470703px;"> want what is best for them! One of the most important things we do as parents is teach our children about strangers. Don't talk to strangers. Never go anywhere with a stranger. Don't accept candy from a stranger. If a stranger has a kitty or puppy or </span><span style="line-height: 20.766666412353516px;">hamster</span><span style="line-height: 20.78333282470703px;"> or </span><span style="line-height: 20.766666412353516px;">ferret</span><span style="line-height: 20.78333282470703px;">--do not go see it! It's most </span><span style="line-height: 20.766666412353516px;">definantely</span><span style="line-height: 20.78333282470703px;"> a trap. We love our children--that's why we do these things</span></b></span></span><br />
<b><span style="font-family: Arial, Helvetica, sans-serif;"><span style="background-color: white; color: #333333; line-height: 20.78333282470703px;"><br /></span><span style="background-color: white;"><span style="color: #333333;"><span style="line-height: 20.78333282470703px;">However, come Halloween through Christmastime, many of these rules go out the window. After dressing our kids up with way to much makeup, we drag them around for the neighborhood to admire; we let them accept candy from pretty much anybody who offers it to them--aka strangers. And then we get frustrated the next day when our children are literally bouncing from wall to wall! Next comes Thanksgiving where the motto is "It only comes once a year--why not enjoy it"--thus destroying the effort to make them eat enough fruits and veggies that we have worked so hard to instill! Instead, we accept things like, "I finished my 3 helpings of dinner and my first helping of pie! Can I have some pumpkin roll?" as </span><span style="line-height: 20.766666412353516px;">acceptable</span><span style="line-height: 20.78333282470703px;"> Thanksgiving </span><span style="line-height: 20.766666412353516px;">etiquette</span><span style="line-height: 20.78333282470703px;">. :)</span></span></span></span></b><br />
<b><span style="font-family: Arial, Helvetica, sans-serif;"><span style="background-color: white; color: #333333; line-height: 20.78333282470703px;"><br /></span><span style="background-color: white; color: #333333; line-height: 20.78333282470703px;">Finally my favorite--Christmas time! Here we drag our already hyper children to malls and parties and force them to sit on the lap of a strange fat man wearing a bright red suit and curly, shaggy, white hair so they can ask him for free toys. And then, we laugh & take pictures when they scream. Then, as we snuggle our hysterical children, we are secretly laughing on the inside at the jolliness that surrounds the Santa tradition.; however, not all kids are afraid to see Jolly Old Saint Nick. Those kids hop up on the stranger's lap and rattle off a list of toys & games they want--for free-- that would provide entertainment for a small third world country. :)</span></span></b><br />
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<span style="background-color: white; color: #333333; line-height: 20.78333282470703px;">For us, it wouldn't be the holidays without turning our back on a few traditional parenting practices! How about you...are you guilty as charged? </span></span></b><br />
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<span style="background-color: white;"><span style="color: #333333; font-family: Arial, Helvetica, sans-serif;"><b><span style="line-height: 20.78333282470703px;">Finally, I should want to </span><span style="line-height: 20.766666412353516px;">condemn</span><span style="line-height: 20.78333282470703px;"> this practice, but alas, like most of you reading this...I find humor & holiday spirit in the backfiring of the values we have tried to instill in our children. If you don't believe me, then hopefully you will enjoy the pictures below as proof! ;)</span></b></span></span><br />
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<span style="background-color: white;"><span style="color: #333333;"><span style="line-height: 20.78333282470703px;"> If you are reading this, copy this post onto your blog and add pictures similar to mine & share! Also, be sure to leave a comment so I can come take a peek! (These pics are from several years ago...I thought it would be fun to show off my beauties when they were younger as well as pre-diabetes days for Syd.)</span></span></span></span></b><br />
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<strong><span style="font-family: Arial, Helvetica, sans-serif;">Its all worth it once you get your bag of goodies though!</span></strong></div>
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Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com4tag:blogger.com,1999:blog-6994229962654491290.post-65630201932474359932012-10-01T19:13:00.000-06:002012-10-02T21:23:48.413-06:00The Difference A Month...Or 3...MakesWow it is easy to make excuses as to why I've slacked on the blog. But all of them are, essentially, excuses. Then every time I thought to update my blog I talked myself out of it due to the fact that there was just too much lapse in time and the update would be too time consuming. But I need to blog. It's an outlet for my thoughts and feelings and when I just want to complain. A lot has happened since my last post so I will briefly catch up and then share the joy with pictures.<br />
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--We had Sydney's walk for a cure. That was a lot of fun and we were able to raise about $2,000 for research. <br />
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--Trial net is a clinical trial for siblings of a Type 1 diabetic. They get a blood draw once a year and check for a few antibodies that are present in a Type 1 Diabetic. Morgan has always had negative results until this year. Positive results don't necessarily mean she will develop T1D but it puts her in a higher risk category. We are waiting for the re-draw results. I keep thinking that I can't handle or afford another T1D but if it happens we always find a way to figure it out.<br />
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--In the last 6 weeks or so, I have heard of 3 Type 1 kids who have died from low blood sugars. We need a cure.<br />
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--2 families that I think very highly of have had to go through hell trying to find a new normal because their husbands passed away too soon. Emilie is the sweetest person you will ever meet. Her amazing husband, Brent, took their 6 year old daughter Abby for a quick ride on the motorcycle. on their trip, they were hit by a drunk driver. Brent pushed Abby off before impact. She was banged up and sore but didn't suffer any broken bones or serious injury. Brent's heroic act to save his daughter also meant that he took the brunt of impact. He passed away leaving Emilie with 5 young kids between the ages of 10 and 8 months old.<br />
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---In September, another dear friend lost her husband to a brain tumor. He was only diagnosed a few months ago. It happened way to quickly. Meri has 4 sons...3 of whom have Type 1 Diabetes. My heart breaks for her. She is one amazing lady. She is very inspirational and writes beautifully. I have been able to gather a lot of diabetes supplies to hopefully help them out for a bit. People have been so generous to give away things to help Meri and her family. It reminds me of what Anne Frank said that people are really good at heart.<br />
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In November Loren and I will celebrate our 10 year anniversary. Our funds are super tight but we are still going to make the most of our special day. I'm married to such a wonderful guy. :)<br />
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--Hadlee has had health issues with swallowing and airway problems...resulting in some procedures at a children's hospital. She seems to be doing well though.<br />
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I guess that is my update. Hopefully I will write something much more inspirational in my next post. :)<br />
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**My 3 girls at Syd's walk.<br />
<img height="400" src="http://img.photobucket.com/albums/v722/Shamae/IMG_20120915_113023-1.jpg?t=1348622174" width="298" /><br />
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**Syd being so brave for her blood draw.<br />
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** This is the way Hadlee gives you "thumbs up." She thinks we are saying, "hands up." We think it's pretty cute.<br />
<img height="400" src="http://img.photobucket.com/albums/v722/Shamae/IMG_20120928_121341.jpg?t=1348856368" width="298" /><br />
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**My girls at the walk's starting line...getting ready to cut the ribbon.<br />
<img height="400" src="http://img.photobucket.com/albums/v722/Shamae/IMG_20120915_100514-1.jpg?t=1348621874" width="298" /><br />
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**Syd and Morgan working away at their dinner job. This night was lasagna and they were making the cheese layer of the lasagna.<br />
<img height="400" src="http://img.photobucket.com/albums/v722/Shamae/IMG_20120925_162656.jpg?t=1348612048" width="298" /><br />
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**And, finally, this nasty burn on my hand has finally healed!! It just has a scar now but looks amazing! (This was not long before it healed over...it looked much worse.)<br />
<img height="400" src="http://img.photobucket.com/albums/v722/Shamae/IMG_20120430_071140.jpg?t=1335832104" width="298" />Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com7tag:blogger.com,1999:blog-6994229962654491290.post-52476145690053599932012-06-22T17:53:00.002-06:002012-06-23T07:24:11.784-06:00Crazy Month...Things in our home have been kind of busy for the past month and, oddly enough, we have done nothing significant. Loren had to have a little surgery on June 1 and spent a couple weeks home with the family while he healed from that. I was reminded why I am not a home body and need time out of the house everyday. :) He finally went back to work this week and has been doing well although, I think he tires easily.<br />
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I turned 29 on June 11. It's a big step. I feel that life is speeding by and it just doesn't slow down. Every year that I age I know it means my parents and grandparents who are still around are just another year older as well. When aging gets a little scary I just remember one of my favorite quotes, "Never regret growing older. Tis a privilege denied to many." We have had some super scary health issues over the past 2 years and I will never regret having another birthday to celebrate.<br />
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Morgan and Hadlee are super. Hadlee still suffers from terrible ear infections that drain down her ear lobes. Her one is ear is so compacted with infection goo that she is going back to the ENT on Monday to get it cleaned out. She has tubes but her ears are just not in the best shape. I don't know if it's a preemie thing or a Hadlee thing but, either way, it's not pleasant. I thank the good Lord above for giving us such a happy baby who only cries if something hurts. Literally. She never cries when she wakes up or anything. She just babbles and plays til we get her out of her crib. She is a gem and I can't imagine life without her. Even though my body/health may never be the same since her awful pregnancy, I coin her "The best bad thing that ever happened to me." :) Morgan is bored already with summer vacay. But I have told her not to worry, I have plenty of chores around here to keep her busy. Morgan has also been acting out angrily lately. I don't know why or what to do. I've exhausted all knowledge and if I don't figure out how to help her soon we are all going to get whiplash from her mood swings. If you have any thoughts, we'd be happy to hear them.<br />
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Sydney's blood sugars have not been stable. We found our insurance is no longer going to cover her brand of insulin. We aren't happy with trying novolog again because we really like humalog (and humalog is cheaper for us). Despite what you think, not all insulins are the same and not all affect kids the same way. I feel like I'm drowning in an ocean and I can't swim. And as much as I want a break from eating, sleeping, talking, and dreaming in numbers and carbs and ratios, etc etc etc, I feel guilty because Syd will never get a break. Ever. We need a cure. We need a cure like we need food. It can't come soon enough. Often it's a world where you are alone even when you have friends and family who are loving and supporting you. It's a world where you walk around people but no ones knows the silent war we are waging every day in our home.<br />
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That is a favorite song of mine and often reminds me of our silent war we wage and everyone who fights the type 1 battle every day. You try to say what everyone wants to hear. Smile because that's what people want to see. When someone asks how you are doing, do they really care to know? Thompson Square sings a song called "Glass." One of my favorite quotes say, "We are fragile. We are human. We are shaped by the light we let through us. We break fast cause we are glass...Try not to judge me cause we walk down different paths." Type 1 is a scary disease. Kids are battling this disease 24-7. Without a break. They are soldiers. And warriors. There is a battle being waged all across the world right now. A battle being fought by soldiers too young to vote, too young to drink, too young to truly understand the fight they have been engaged in unwittingly. They have not asked for this battle, they wouldn't choose it knowingly. They fight. Without fighting, they die. I hope, I pray, I struggle on so one day, hopefully one day soon, this battle is won. For Sydney and those who came before her and those who will come after her, we will continue to fi<span style="font-family: Arial, Helvetica, sans-serif;"><span style="line-height: 16px;"><span style="font-size: x-small;">ght. </span></span></span></div>
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<span style="line-height: 16px;"><span style="font-family: Arial, Helvetica, sans-serif;">We are going to, once again, raise money for our Juvenile Diabetes Research Foundation team, Sydney's Soldiers. Please pass the word around and in the next couple weeks I will have our page ready for donations. It's hard to think about the kids that have passed on since last year at this time because of their Type 1 Diabetes. This disease kills. We need a cure. I don't know where we will be next year at this time but we keep putting one foot in front of the other until we can say that Sydney USED to have Type 1 Diabetes. Thank you.</span></span></div>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com2tag:blogger.com,1999:blog-6994229962654491290.post-43378958361015249942012-05-20T22:18:00.000-06:002012-05-21T12:23:41.409-06:00What's Special About a Hero?<div style="text-align: left;">
<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;"><b>D-Blog Day 7--Diabetes Hero</b></span></span></div>
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<i><span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;">Let’s end our week on a high note and blog about our “Diabetes Hero”. It can be anyone you’d like to recognize or admire, someone you know personally or not, someone with diabetes or maybe a </span><a href="http://www.diabetapedia.com/type-3/" style="background-color: white; color: #8fd845; font-family: 'PT Sans'; font-size: 16px; font-weight: bold; line-height: 25px;" target="_blank">Type 3</a><span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;">. It might be a fabulous endo or CDE. It could be a d-celebrity or role-model. It could be another DOC member. It’s up to you – who is your Diabetes Hero??</span></i></div>
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<span style="font-family: 'PT Sans';"><span style="line-height: 25px;">This is a picture I have hanging in my home. It defines a hero. A hero is courageous, bold, and persevering. They have superior qualities for their good deeds of any kind. A real hero is someone who does the right thing when no one else is looking. </span></span></div>
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<img height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiagDpSpTFdxXqP1IdF9mLdXfpRmy0lnGg_mY0HD4xRlegvqR1NcJhsJzCYBqWuMV0HPfpSJEr1VK_MzjfBSOUwqPJwdl_7FFMJjK_VudpQaIDRknAvdnIGk_Lh38VhN8BZzbKPJwD33Cs/s400/100_7366.jpg" width="400" /></div>
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Sydney was dx with Type 1 Diabetes at age 4. She never let her disease slow her down. I wish I could say the same for me. Her diagnosis completely blindsided me and I didn't handle it in stride like Sydney did. I wanted to fight against the diagnosis. I cried so much. I felt depressed from the overwhelming nature of the disease. The learning curve gives no time to make mistakes...but we made them anyway. Sydney patiently waited while we learned the ropes. She has her ups and her downs but she handles it. She is facing a lifetime with this disease. She faces many challenges and potential side effects that are scary for an adult...I can't imagine how it is for Sydney. </div>
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<i>Dear Sydney,</i></div>
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<i> I know you get scared at times. That's ok. It's a scary disease. I know it hurts. That's ok, shots can sometimes hurt. Sometimes you feel bad for crying. But crying is ok--God gave us that ability for a reason. Sydney, I know you get frustrated when your numbers are hard to manage. That's ok. You have parents who love you and we want to carry as much of your frustrations as we can. We want you to be as normal of a kid as possible. Don't feel bad passing the burden onto us. </i><br />
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<i> I hope I always get to watch you jumping on the tramp and running through the sprinkler--that means you still have your legs. I love watching you laugh at your baby sister and meticulously color a beautiful picture or watch you point out beautiful things in nature --that means your eyes still work. I'm willing to give up sleeping through the night--while the world sleeps--so I can check your blood sugar--that means your heart is still beating. Always remember you have a family who loves you and will always love you. You are an inspiration to so many people who have grown to love and admire you. I wish love could cure you--if that were possible, you would have been cured years ago. But, until a cure is found, we will continue to do our part to keep you healthy and let you be a free-spirited kid with as few worries as possible. And, through it all, you will continue to be our little hero.</i></div>
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<i>With love forever and ever,</i></div>
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<i>Mom and Dad</i></div>
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<br /></div>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com4tag:blogger.com,1999:blog-6994229962654491290.post-39379111530805847602012-05-19T21:54:00.004-06:002012-05-19T23:00:49.307-06:00Day 6--I can't believe I haven't missed a day!<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<b>D-Blog Day 6--Saturday Snapshots!</b></div>
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<i style="color: #444444;"><b>Today, Karen from Bitter-Sweet Diabetes gave a great topic to write about. Back for the third year, let’s show everyone what life with diabetes looks like! With a nod to the <a href="http://www.flickr.com/groups/mydiabetesathome/" target="_blank">Diabetes 365 project</a>,
let’s grab our cameras again and share some more d-related pictures.
Post as many or as few as you’d like. Feel free to blog your thoughts
on or explanations of your pictures, or leave out the written words and
let the pictures speak for themselves</b>.</i></div>
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How
can I best accomplish the task from above? I think the best/easiest way
to get the message across would be to put below some of the videos I've
made...and re-share one I didn't make. Please take a few minutes to
view them and educate yourself on the day in the life of us, the L
family. </div>
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<b><i> <br />
</i></b></div>
<div style="color: magenta; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<b><i>Sydney's
Walk Video--this video has been used by our JDRF chapter for 3 years
now. They play it at all their corporate events and to potential
corporate sponsors. I'm pretty proud of the videos I make and I hope you
enjoy them too!</i></b></div>
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<i><br />
</i></div>
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<i><object height="315" width="420"><param name="movie"
value="http://www.youtube.com/v/YI1osvwL2ec?version=3&hl=en_US&rel=0">
</param>
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<param
name="allowscriptaccess" value="always">
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type="application/x-shockwave-flash" width="420" height="315"
allowscriptaccess="always"
allowfullscreen="true"></embed></object></i></div>
<div style="background-color: white; color: #a64d79; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<b><i><br />
</i></b></div>
<div style="background-color: white; color: #a64d79; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<b><i>This
next video was the first one I ever made. I really like the music
played in this one. I actually spent hours coordinating which picture I
wanted to correlated with specific lyrics from the songs. Again, enjoy!</i></b></div>
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<i><br />
</i></div>
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<i><object height="315" width="420"><param name="movie"
value="http://www.youtube.com/v/pqx72_K0A-Y?version=3&hl=en_US&rel=0">
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allowscriptaccess="always"
allowfullscreen="true"></embed></object></i></div>
<div>
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<i><br />
</i></div>
<i><b><span style="color: purple; font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif;">This is one more video I made a couple years ago to the theme song from "Cheers." One of the best things about a diabetes online community is that we get to meet and commiserate with other parents who really, truly "get it." Sometimes we just wanna go where everybody knows our name. And our struggles. And our successes. </span></b></i><br />
<div style="font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif;">
<i><br /></i></div>
<span style="font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif;"><i></i></span><br />
<div>
<span style="font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif;"><i><embed flashvars="&p=9fe9c110c14f09b4df5d02&skin_id=1702&host=http://www.onetruemedia.com" height="382" name="FLVPlayer" pluginspage="http://www.macromedia.com/go/getflashplayer" quality="high" salign="LT" scale="noscale" src="http://www.onetruemedia.com/share_view_player?p=9fe9c110c14f09b4df5d02" type="application/x-shockwave-flash" width="408" wmode="transparent"></embed><div style="font: 12px/13px verdana,arial,sans-serif; line-height: 20px; margin: 0px; padding-bottom: 15px; text-align: center; width: 408px;">
<a href="http://www.onetruemedia.com/landing?&utm_source=emplay&utm_medium=txt5" style="text-decoration: none;" target="_blank">Make a video - it's fun, easy and free!<br /><span style="text-decoration: underline;">www.onetruemedia.com</span></a></div>
</i></span></div>
<br />
<span style="font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif;"><i><br /></i></span></div>
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<b><i><span style="color: #674ea7;">This
final video I have shared several times in the last couple weeks. If
you haven't had a chance to watch it yet, now is your opportunity! You
can read the lyrics below if there are parts you didn't understand!
And, feel free to share any items you find education, touching, or
entertaining from my blog.</span><br />
</i></b></div>
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<i><br />
</i></div>
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<i><object height="315" width="420"><param name="movie"
value="http://www.youtube.com/v/BDATgiMwRNA?version=3&hl=en_US&rel=0">
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name="allowscriptaccess" value="always">
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<embed
src="http://www.youtube.com/v/BDATgiMwRNA?version=3&hl=en_US&rel=0"
type="application/x-shockwave-flash" width="420" height="315"
allowscriptaccess="always"
allowfullscreen="true"></embed></object> </i></div>
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<i><br />
</i></div>
<div style="color: magenta; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: center;">
<strong style="background-color: white; line-height: 20px; text-align: left;"><em>The Type 1 Mom Song</em></strong></div>
<span style="background-color: white; color: magenta; font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif; line-height: 20px; text-align: left;"></span><br />
<div style="color: magenta; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: center;">
<span style="background-color: white; line-height: 20px; text-align: left;">Get up now, get up now. You look pale to me.</span></div>
<span style="background-color: white; color: magenta; font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif; line-height: 20px; text-align: left;">
</span><br />
<div style="color: magenta; font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: center;">
<span style="background-color: white; line-height: 20px; text-align: left;">Check it now, check it now. We will have to see.</span></div>
<span style="background-color: white; color: magenta; font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif; line-height: 20px; text-align: left;">
</span><br />
<span style="background-color: white; color: magenta; font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif; line-height: 20px; text-align: left;"></span><br />
<span style="background-color: white; color: magenta; font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif; line-height: 20px; text-align: left;"></span><br />
<div style="text-align: center;">
<span style="background-color: white; color: magenta; font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif; line-height: 20px; text-align: left;">Are you high? Are you low? Do you have to eat?</span></div>
<span style="background-color: white; color: magenta; font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif; line-height: 20px; text-align: left;">
<div style="text-align: center;">
Check it now! Do you have to pee?</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Get your clothes. Are you wearing that?</div>
<div style="text-align: center;">
Wash your face. Brush your teeth. Where’s your homework at?</div>
<div style="text-align: center;">
Pack your lunch so you don’t have to eat school crap.</div>
<div style="text-align: center;">
Don’t roll your eyes at me like that.</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Quick eat so we will have the time to calculate the carbs.</div>
<div style="text-align: center;">
Take your bolus so that you will not go high and have to check ketones.</div>
<div style="text-align: center;">
Remember that the endo is expecting you today at three.</div>
<div style="text-align: center;">
We will get the good mommy test grade they like to call your A1C.</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Don’t panic, I’m sure that your log book is here somewhere.</div>
<div style="text-align: center;">
It just can't grow legs and jump up and disappear.</div>
<div style="text-align: center;">
Have you changed your needle since last week?</div>
<div style="text-align: center;">
I swear to your dad I will have to speak. Don’t forget to check before you eat.</div>
<div style="text-align: center;">
How many carbs are in that treat? </div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Where’s the work you missed at school today?</div>
<div style="text-align: center;">
Why not? What’s the problem? What did she say?</div>
<div style="text-align: center;">
I’ll laminate that 504 and nail that sucker to your teacher’s door!</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Don’t test my patience. I’m sleep deprived.</div>
<div style="text-align: center;">
I have no life. Can’t recall my last vacation.</div>
<div style="text-align: center;">
So I’ve closed the kitchen for the night.</div>
<div style="text-align: center;">
It’s restaurant food. No carb counts. Hope I guess it right.</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Grab your ball and skates it’s time to go</div>
<div style="text-align: center;">
So we might be on time for once.</div>
<div style="text-align: center;">
Get a juice and a snack so you don’t go low. Exercise is good you know.</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Kick it hard. Jump high. What an awesome catch.</div>
<div style="text-align: center;">
Strips and meter I will fetch. Check it quick so that you get right back</div>
<div style="text-align: center;">
Knowing your number’s on track. Each day is a blessing. </div>
<div style="text-align: center;">
I give thanks for you being mine. The challenges are many. We will overcome in time.</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Get your shower and your pump shirt on so we don’t have an incident. </div>
<div style="text-align: center;">
We can’t afford to repeat last years pump in the toilet accident.</div>
<div style="text-align: center;">
Brush your hair, brush your teeth. Get your pj’s on.</div>
<div style="text-align: center;">
Take your blood sugar now. Let’s see what wrong.</div>
<div style="text-align: center;">
Have a juice. Take seat. Get a cold washcloth.</div>
<div style="text-align: center;">
Get a-HEY DON'T YOU PASS OUT ON ME! Stay still until your 103.</div>
<div style="text-align: center;">
Have a root beer, twizzlers, cupcakes, snow cone,</div>
<div style="text-align: center;">
Snickers, juice or milkshakes. So if all your friends</div>
<div style="text-align: center;">
Ate a thousand carbs you’d eat them too! </div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
If I’ve said it once</div>
<div style="text-align: center;">
I’ve said at least a million times that we’ll get through all this!</div>
<div style="text-align: center;">
I’m proud of how you handle it. How are your supplies at school? Do you have strips? Needles too?</div>
<div style="text-align: center;">
What! We’re out of strips! Where is the Walgreens that’s open nights?</div>
<div style="text-align: center;">
I’ll be right back, make sure your homework’s done and in your pack.</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
Get in bed. Get a hug and kiss goodnight. I’ll check you at midnight.</div>
<div style="text-align: center;">
Don’t forget, I love you. And today we will repeat again for sure</div>
<div style="text-align: center;">
Everday until a cure. You can help us find the cure.</div>
<div style="text-align: center;">
Give now. Give now. Give now. Give now.</div>
<div style="text-align: center;">
We thank you. We thank you. We thank you. We thank you.</div>
<div style="text-align: center;">
Find the cure. The cure. The cure. The cure. The cure! The cure.</div>
</span><br />
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<br /></div>
<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">
<br /></div>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com1tag:blogger.com,1999:blog-6994229962654491290.post-43492577223269843322012-05-18T22:58:00.002-06:002012-05-19T17:14:53.724-06:00Day 5--What they should know?<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;"><br /></span><br />
<div style="text-align: left;">
<span style="font-family: "PT Sans";"><span style="line-height: 25px;"><b>D-Blog Day 5---What "they" should know:</b></span></span></div>
<i><span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans";"><span style="line-height: 25px;">Today let’s borrow a topic from an online chat that occurred last September</span></span></span><span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;">. The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”. Let’s do a little advocating and post what we wish people knew about diabetes. Have more than one thing you wish people knew? Go ahead and tell us everything.</span></i>
<br />
<i><span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;"><br /></span></i><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans";"><span style="line-height: 25px;">Wow...how to begin? This is something that all T1 parents think about regularly because we are always hearing things that are bothersome. Sometimes it takes a mini chant in my head to help me keep my cool..."They just don't know. They just don't know. They just don't know. They just don't know." I suppose the best way to make this post the most readable with the most information is to make 2 lists and each list has my top 5 picks. The first are common misconceptions we hear on a regular basis and and 2nd lists simple facts that I want people to understand. And, despite these aggravating moments, think about the people whose mindsets have changed because of YOU! Friends. Family. Co-workers. Teachers. Principals. Medical personnel. It happens one person at a time. And, as a group, we have moved mountains with the people we have taught. It's a slow process but, together, we can continue to move those mountains! :) </span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans";"><span style="line-height: 25px;"><br /></span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: x-large;"><span style="line-height: 25px;"><b><i>Shamae's list of top 3 annoying misconceptions T1 Parents hear over and over...</i></b></span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans";"><span style="line-height: 25px;"><b><i><u><br /></u></i></b></span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;">1--Oh was she overweight when she was diagnosed then and losing weight should fix her diabetes right?</span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;"><br /></span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;">2--Wow, how much sugar did she have to cause diabetes in a 4 year old?</span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;"><br /></span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;">3--But she is going to outgrow it, right?</span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;"><br /></span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;">4--Hey your kid is eating a cookie--or cake, or candy, or anything sweet--, are you sure they can eat that? (In my head I always think, "yes stranger, you sure do know more about what my T1 kid can have even though this is a disease you know nothing about....but sure, you know more than I, her MOM, does." :-)</span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;"><br /></span></span></span><br />
<span style="background-color: white; text-align: left;"><span style="font-family: "PT Sans"; font-size: large;"><span style="line-height: 25px;">5--So does she have the "bad" kind of diabetes? (I wasn't aware there was a good kind?) Cause my <<insert any="" kind="" of="" relative="">> has diabetes. They got it when they were older and I know their dr told them to eat better and lose weight and their diabetes could go away. So have you tried that? (Yes, at dx I had a 27 lb 4 1/2 year old. She was already very underweight but sure, why didn't I try starving her longer and see if that did the trick?) Ai yi yi! </insert></span></span></span><br />
<i><span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;"><br /></span></i><br />
<span style="background-color: white; font-family: "PT Sans"; line-height: 25px; text-align: left;"><b><i><span style="font-size: x-large;">Shamae's list of top 3 T1 facts that I wish everyone and their pets knew...</span></i></b></span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;"><b><i><u><br /></u></i></b></span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;">1--Diet/exercise/weight have NOTHING AT ALL to do with a Type 1 dx. While it usually plays a part in a Type 2 dx, it has never and will never be a part of why a person gets Type 1. A T1 person will have lost weight and generally is underweight at dx because their body is starving to death. Insulin is the middle man that takes sugar from the bloodstream and feeds all the cells in the body. When insulin isn't produced, the sugar builds up in the bloodstream and the cells start starving...causing weight loss. Without insulin a T1 patient will, without question, die. </span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;"><br /></span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;">2--Neither Sydney nor us did anything to make her body develop T1 Diabetes. She did not eat too many sweets. She did not have too much juice. She did not have too much Halloween candy. No food, snack, treat, candy, or beverage is the reason behind a T1 dx. A <a href="http://www.deathofapancreas.com/" target="_blank">friend</a> made a video a few years ago and in it she says, "There are only 2 things my daughter cannot eat. 1: poison. 2: cookies........that are made with poison." haha it makes me laugh. What we do know about T1 is that there is a genetic predisposition and some type of environmental trigger (the triggers are still unknown). Once the trigger is triggered, there is no turning back. There is no way to reverse T1. There is no way to cure T1. Insulin is not a cure; it's life support. </span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;"><br /></span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;">3--Although Sydney has a tough road ahead, she is still able to enjoy the things that non-diabetics can enjoy. She can do anything she wants and be anything she wants--with the exception of a couple professions that don't allow T1 Diabetics due to the dangerous side effects that would potentially harm other people. Yes she needs to be more careful with some things and pay more attention to how she feels and what she eats but she still has a world of opportunities out there for her. She has grown up fast and practices more responsibility than the average 8 year old but she also has the opportunity to have more compassion for humanity. :) </span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;"><br /></span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;">A good rule of thumb for everyone to follow--and this goes for anything, not just T1D--if you don't understand something or if it's a subject you don't know anything about, don't just guess or spout off with random thoughts. Don't guess...ASK! Don't make comments like those in my first list. ASK the parent to briefly explain. Chances are, the parent will be thrilled with getting to explain the facts instead of trying to correct the fallacies. :) And, to understand a day in the life of a T1 parent, watch the video below. And, you are in for a real treat cause I've posted the lyrics below the video in case there are lines you missed. :) </span><br />
<span style="background-color: white; font-family: "PT Sans"; font-size: 16px; line-height: 25px; text-align: left;"><br /></span><br />
<div style="text-align: center;">
<span style="background-color: white; line-height: 25px; text-align: left;"><span style="font-family: "PT Sans";"><object height="315" width="420"><param name="movie" value="http://www.youtube.com/v/BDATgiMwRNA?version=3&hl=en_US&rel=0">
</param>
<param name="allowFullScreen" value="true">
</param>
<param name="allowscriptaccess" value="always">
</param>
<embed src="http://www.youtube.com/v/BDATgiMwRNA?version=3&hl=en_US&rel=0" type="application/x-shockwave-flash" width="420" height="315" allowscriptaccess="always" allowfullscreen="true"></embed></object></span></span></div>
<span style="background-color: white; line-height: 25px; text-align: left;"><span style="font-family: "PT Sans";"><br /></span></span><br />
<div style="text-align: center;">
<strong style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;"><em>The Type 1 Mom Song</em></strong></div>
<span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;"></span><br />
<div style="text-align: center;">
<span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;">Get up now, get up now. You look pale to me.</span></div>
<span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;">
</span><br />
<div style="text-align: center;">
<span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;">Check it now, check it now. We will have to see.</span></div>
<span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;">
</span><br />
<span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;"></span><br />
<span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;"><div style="text-align: center;">
Are you high? Are you low? Do you have to eat?</div>
<div style="text-align: center;">
Check it now! Do you have to pee?</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Get your clothes. Are you wearing that?</div>
<div style="text-align: center;">
Wash your face. Brush your teeth. Where’s your homework at?</div>
<div style="text-align: center;">
Pack your lunch so you don’t have to eat school crap.</div>
<div style="text-align: center;">
Don’t roll your eyes at me like that.</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Quick eat so we will have the time to calculate the carbs.</div>
<div style="text-align: center;">
Take your bolus so that you will not go high and have to check ketones.</div>
<div style="text-align: center;">
Remember that the endo is expecting you today at three.</div>
<div style="text-align: center;">
We will get the good mommy test grade they like to call your A1C.</div>
<div style="text-align: center;">
<br /></div>
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Don’t panic, I’m sure that your log book is here somewhere.</div>
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It just can't grow legs and jump up and disappear.</div>
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Have you changed your needle since last week?</div>
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I swear to your dad I will have to speak. Don’t forget to check before you eat.</div>
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How many carbs are in that treat? </div>
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<br /></div>
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Where’s the work you missed at school today?</div>
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Why not? What’s the problem? What did she say?</div>
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I’ll laminate that 504 and nail that sucker to your teacher’s door!</div>
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<br /></div>
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Don’t test my patience. I’m sleep deprived.</div>
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I have no life. Can’t recall my last vacation.</div>
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So I’ve closed the kitchen for the night.</div>
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It’s restaurant food. No carb counts. Hope I guess it right.</div>
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<br /></div>
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Grab your ball and skates it’s time to go</div>
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So we might be on time for once.</div>
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Get a juice and a snack so you don’t go low. Exercise is good you know.</div>
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<br /></div>
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Kick it hard. Jump high. What an awesome catch.</div>
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Strips and meter I will fetch. Check it quick so that you get right back</div>
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Knowing your number’s on track. Each day is a blessing. </div>
</span><span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;"><div style="text-align: center;">
I give thanks for you being mine. The challenges are many. We will overcome in time.</div>
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<br /></div>
<div style="text-align: center;">
Get your shower and your pump shirt on so we don’t have an incident. </div>
</span><span style="background-color: white; color: #333333; font-family: Times, serif; line-height: 20px; text-align: left;"><div style="text-align: center;">
We can’t afford to repeat last years pump in the toilet accident.</div>
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Brush your hair, brush your teeth. Get your pj’s on.</div>
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Take your blood sugar now. Let’s see what wrong.</div>
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Have a juice. Take seat. Get a cold washcloth.</div>
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Get a-HEY DON'T YOU PASS OUT ON ME! Stay still until your 103.</div>
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Have a root beer, twizzlers, cupcakes, snow cone,</div>
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Snickers, juice or milkshakes. So if all your friends</div>
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Ate a thousand carbs you’d eat them too! </div>
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<br /></div>
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If I’ve said it once</div>
<div style="text-align: center;">
I’ve said at least a million times that we’ll get through all this!</div>
<div style="text-align: center;">
I’m proud of how you handle it. How are your supplies at school? Do you have strips? Needles too?</div>
<div style="text-align: center;">
What! We’re out of strips! Where is the Walgreens that’s open nights?</div>
<div style="text-align: center;">
I’ll be right back, make sure your homework’s done and in your pack.</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Get in bed. Get a hug and kiss goodnight. I’ll check you at midnight.</div>
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Don’t forget, I love you. And today we will repeat again for sure</div>
<div style="text-align: center;">
Everday until a cure. You can help us find the cure.</div>
<div style="text-align: center;">
Give now. Give now. Give now. Give now.</div>
<div style="text-align: center;">
We thank you. We thank you. We thank you. We thank you.</div>
<div style="text-align: center;">
Find the cure. The cure. The cure. The cure. The cure! The cure.</div>
</span>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com0tag:blogger.com,1999:blog-6994229962654491290.post-57607828483899686232012-05-17T23:41:00.001-06:002012-05-17T23:45:48.119-06:00Why Summer Vacation is Really for Parents...<br />
<span style="font-size: large;">With summer vacation about a week away, I thought this was very pertinent. Of course, my oldest is only in 2nd grade but I can feel deep inside that this picture is full of wisdom. I think as the years go by, I will come to live this reality and not just "feel" it. :) This picture explains why summer vacation is really for parents. God bless my summer vacation! :) Enjoy!</span><br />
<div style="text-align: center;">
<img height="281" src="https://fbcdn-sphotos-a.akamaihd.net/hphotos-ak-ash3/178944_315470828528419_177387432336760_733254_939609254_n.jpg" width="400" /></div>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com2tag:blogger.com,1999:blog-6994229962654491290.post-90995318526034073072012-05-17T22:24:00.000-06:002012-05-18T09:26:14.007-06:00Fantasies! Oy!<div style="text-align: left;">
<b><span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;"><br /></span></b><br />
<b><span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;">D-Blog Day 4: Fantasy Diabetes Device</span></b></div>
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<br />
<span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;">Karen from Bitter-Sweet Diabetes had an interesting writing challenge for today's topic for</span><span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;"><span style="color: blue;"> <a href="http://crazy-happy-life.blogspot.com/2012/05/diabetes-blog-week-2012.html">D-Blog Week</a></span><span style="color: #755a2a;">.</span><i style="color: #755a2a;"> </i></span><br />
<span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;"><i><br /></i></span><br />
<span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;"><i>Tell us what your Fantasy Diabetes Device would be? Think of your dream blood glucose </i></span><span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; font-style: italic; line-height: 25px;">checker, a delivery system for insulin or other meds, a magic carb counter, etc etc etc. The sky is the limit – what would you love to see?</span></div>
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<i><span style="background-color: white; color: #755a2a; font-family: 'PT Sans'; font-size: 16px; line-height: 25px;"><br /></span></i></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;">Hmmm, I'm fantasizing of course, but I would choose a device that not only counted carbs perfectly but also could take those same carbs and calculate the precise amount of insulin needed so Sydney's blood sugars stayed in perfect harmony 24 hours a day, 7 days a week, 365 days a year. Pizza, Chinese food, super sugary treats, or meals void of carbs completely would be no issue for my fantasy device. My creation would figure in exact amounts of exercise from day to day and either increase or decrease insulin amounts accordingly. The device would work similarly when it's user was sick or stressed or anxious, or sad, or happy, or excited, or a myriad of similar emotions--it would be individually tailored to the user's specific needs at any given time or place.</span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;"><br /></span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;">This product would be so amazingly flawless, parents of Type 1 children would no longer need to get up once, twice, three times (or sometimes more!) per night to check their children's blood sugars. In fact, it would be so spot-on perfect, it would require NO blood sugar testing at all! To top it off--as if it could get any better--I've already come up with the perfect name for my device! Drum-roll please! </span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;"><br /></span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;">Lets call it: <i>A Cured Pancreas!</i> </span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;"><br /></span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;">Alas, this is strictly a fantasy. And, with that grand finale, I need to close this post because Sydney was low at her last blood sugar check 20 minutes ago. She was sound asleep but her body was on the warpath, dropping her from a blood sugar of 200 at bedtime down to 47 in an hour flat. </span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;"><br /></span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;">However, lets continue working on making my fantasy device a reality. Our Walk for the Cure is coming up in September. Soon I will have fundraising information on my blog. Once again we would love to send out the invite and ask people to either walk with us, volunteer to fundraise with us (no amount raised is too small!), or donate to Sydney's team, Sydney's Soldiers (every dollar is important!), so we can continue to raise money on behalf of JDRF who is dedicated to funding research so we can find a cure!</span></span><br />
<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;"><br /></span></span><br />
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;"><b> I continue to hope and pray that someday Sydney will be able to say, "I USED to have Type 1 Diabetes."</b></span></span></div>
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<span style="color: #755a2a; font-family: 'PT Sans';"><span style="line-height: 25px;"><br /></span></span></div>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com4tag:blogger.com,1999:blog-6994229962654491290.post-34820883664458143822012-05-16T22:04:00.000-06:002012-05-16T22:08:50.866-06:00D-Blog Day 3--One Thing to Improve<br />
<i><b style="color: black;">One Thing to Improve - Wednesday 5/16</b> </i><br />
<i><br />
Yesterday we gave ourselves and our loved ones a big pat on the back for
one thing we are great at. Today let’s look at the flip-side. We
probably all have one thing we could try to do better. Why not make
today the day we start working on it. No judgments, no scolding, just
sharing one small thing we can improve so the DOC can cheer us on!</i><br />
<br />
Well another tough topic. Trying to find only 1 thing to write about that we need to improve on is impossible because there are always many things we can be doing better. Working as a full time pancreas it a very difficult job and we only make it harder when we take these numbers so personally.<br />
<br />
So my challenge this week is to try and pat ourselves on the back more. We can take our job as pancreas seriously while still striving for those good numbers. One of my favorite quotes says, <i><b>"Courage doesn't always roar. Sometimes courage is a quiet voice at the end of the day saying: I will try again tomorrow."</b></i> Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com1tag:blogger.com,1999:blog-6994229962654491290.post-76536520242340537932012-05-15T22:34:00.002-06:002012-05-15T22:34:35.503-06:00D-Blog Day 2--One Great Thing<b><u>Today's topic for D-blog week is this</u></b>:<i> <span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;">Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves when we aren’t “perfect”. But today it’s time to give ourselves some much deserved credit. Tell us about just one diabetes thing you (or your loved one) does spectacularly! Fasting blood sugar </span><span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;">checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes. Nothing is too big or too small to celebrate doing well! </span></i><br />
<i><span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;"><br /></span></i><br />
<span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;">This is an interesting topic to write about. Trying to parent a child with Type 1 Diabetes automatically comes with a truckload of guilt. Then you add bad blood sugars, poor A1Cs, long nights, or your child suffering because they are feeling sick due to high ketones and the general issues that come along, it gets too easy to start listing every way we feel we are failing our children. I like this topic because it forces us to take a look at our parenting habits and realize that we are strong. We try hard. We think hard. We learn hard. We stretch ourselves to the limit making sure our children are well integrated, happy, and loved--the last one being the most important of all. No matter what happens, our kids know they are loved. So, what do I do well, as a D-mom? After considering some options, I decided to write about our organization. </span><br />
<span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;"><br /></span><br />
<span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;">Sydney never leaves the house without her "d-pack." Every night we re-stock the d-pack with anything she might need at any given time. I'm proud that we got into this habit of restocking every night. Syd helps with the process as well which is wonderful because it's teaching her what she should carry with her at all times so she can properly manage her diabetes...or help out a fellow diabetic--which has happened more than once where we were able to help treat a low for another person with D. </span><br />
<span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;"><br /></span><br />
<span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;">So, without further delay, meet Syd's d-pack--which is labeled on the inside with her name, Type 1 Diabetes, and a contact number. Her pack always contains: a glucometer, lancets, 2 vials of test strips, 2 extra batteries for pump and glucometer, 2 juice boxes, 1 glucose fast acting drink, glucose tablets, laffy taffy or similar candy, glucose gel, glucagon, syringes in case pump breaks or the battery dies. (You can use a needle to draw insulin from a pump reservoir, </span><span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;">(That has come in handy more than once),</span><span style="background-color: white; text-align: left;"><span style="font-family: 'PT Sans';"><span style="line-height: 25px;"> immunization records (she always has her pack with her so when she is at the dr and needs an update, I always know it will be with us.) And last but certainly not least, alcohol wipes to clean fingers that are laced with food or drink that would taint a blood sugar reading. If you aren't in the habit of carrying a kit, I highly suggest it. While it might be a nuisance keeping it stocked every night, I can guarantee you will be patting yourself on the back when the time comes where the pack is needed to treat the nasty side effects that come from living with Diabetes. </span></span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj913kKwbqdPepbuSNA5iEYVRtgOaiMCRSBN50eH6S30P1dtDIUu8S5Xpcs64jKFtVJSP3O1QPcgrjIg61rZeijSLd5C8lHkL_vUyyAZxqkOGzC5nrPrRxI3MtqD3GflQHIhp-3PFcjoMQ/s1600/Sydney's+pack.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj913kKwbqdPepbuSNA5iEYVRtgOaiMCRSBN50eH6S30P1dtDIUu8S5Xpcs64jKFtVJSP3O1QPcgrjIg61rZeijSLd5C8lHkL_vUyyAZxqkOGzC5nrPrRxI3MtqD3GflQHIhp-3PFcjoMQ/s400/Sydney's+pack.jpg" width="298" /></a></div>
<span style="background-color: white; font-family: 'PT Sans'; font-size: 16px; line-height: 25px; text-align: left;"><br /></span>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com4tag:blogger.com,1999:blog-6994229962654491290.post-80687990890269407762012-05-14T09:19:00.004-06:002012-05-14T23:27:29.330-06:00What is a D-mamma?I can't take credit for this post, but I can back it up in it's entirety. Meet a dear friend of mine, <a href="http://www.ourdiabeticlife.com/2009/06/our-story.html">Meri.</a> She lives with her hubby (who is battling cancer--keep him in your prayers/thoughts), 4 sons (3 of whom have Type 1 Diabetes), and their amazing Diabetes Alert Dog, Lawton. She is great at putting our thoughts into words. This is one such post of hers. I wanted to share it here. The message she shares applies to lots of issues that parents face. Parents with children with autism or crohns disease or other diseases that plague the bodies of our sweet kids. Meri is great to put into words what we are feeling. Thanks Mer for the great post!<br />
<br />
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<h3 class="post-title entry-title sIFR-replaced" style="background-color: white; color: #666666; font-family: Merriweather; font-size: 25px; font-weight: normal; line-height: 1.4em; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0.25em; padding-bottom: 4px; padding-left: 0px; padding-right: 0px; padding-top: 0px; text-align: center; visibility: visible !important;">
<span style="color: #333333; font-family: Calibri; font-size: 18px; line-height: 1.6em;">We are called D Moms.</span><span style="color: #333333; font-family: Calibri; font-size: 18px; line-height: 1.6em;"> </span><span style="color: #333333; font-family: Calibri; font-size: 18px; line-height: 1.6em;"> </span><span style="color: #333333; font-family: Calibri; font-size: 18px; line-height: 1.6em;">D Mamas.</span><span style="color: #333333; font-family: Calibri; font-size: 18px; line-height: 1.6em;"> </span><span style="color: #333333; font-family: Calibri; font-size: 18px; line-height: 1.6em;"> </span><span style="color: #333333; font-family: Calibri; font-size: 18px; line-height: 1.6em;">Even Type 3's.</span></h3>
<div class="post-body entry-content" id="post-body-5011803586277596517" style="background-color: white; color: #333333; font-size: 18px; line-height: 1.6em; margin-bottom: 0.75em; margin-left: 0px; margin-right: 0px; margin-top: 0px; text-align: center;">
<br />
<span style="font-family: Calibri;">Sometimes we get a bad rap.</span><br />
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<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">~We're too "intense."</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">~We worry too much.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">~We are overbearing.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">~We over think.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">~We over react.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">~We over manage.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">And I only have one thing to say about all of that...</span></div>
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<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">You are probably right.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">I want to tell you that if you are a parent, you can understand.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">But that is not true.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">I want to tell you that if you have <a href="http://www.ourdiabeticlife.com/2012/05/we-are-d-mothers.html#" id="_GPLITA_0" in_rurl="http://www.textsrv.com/click?v=VVM6MjA2NTk6MTAyMTpkaWFiZXRlczoxZTVjNzNmM2M1NWYyN2JlNGM5NTI3Nzk5MTNjOWU3Zjp6LTExMTctMzI3NzM6d3d3Lm91cmRpYWJldGljbGlmZS5jb20%3D" style="color: #666666;" title="Powered by Text-Enhance">diabetes</a> yourself, you can understand.</span></div>
<br />
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">But that is not true either...just as I will never fully understand your diabetic life,</span></div>
<div class="MsoNormal" style="font-family: Merriweather; margin-bottom: 10pt; margin-left: 0in; margin-right: 0in; margin-top: 0in;">
<span style="font-family: Calibri;">you will never fully understand mine.</span></div>
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<span style="font-family: Calibri;">The only way you would understand what goes on in the swelly brain of a D Mama,</span></div>
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<span style="font-family: Calibri;">is if you were a D Mama yourself.</span></div>
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<span style="font-family: Calibri;">We are <a href="http://www.ourdiabeticlife.com/2012/05/we-are-d-mothers.html#" id="_GPLITA_3" in_rurl="http://www.textsrv.com/click?v=VVM6MTc5MDM6MzM2OnNwZWNpYWw6NTAxOGFlMWRjOWU5Yzc2YzU1NjI3ODhhNGMwY2U1ZWM6ei0xMTE3LTMyNzczOnd3dy5vdXJkaWFiZXRpY2xpZmUuY29t" style="color: #666666;" title="Powered by Text-Enhance">special</a>. Chosen for our story, as you were chosen for yours.</span></div>
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<span style="font-family: Calibri;">We are fighters, and we will fight until our last breath to keep our children safe.</span></div>
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<span style="font-family: Calibri;">New technologies like fast acting <a href="http://www.ourdiabeticlife.com/2012/05/we-are-d-mothers.html#" id="_GPLITA_2" in_rurl="http://www.textsrv.com/click?v=VVM6MjA1ODk6MjAxOmluc3VsaW46ZmNiN2JiYWZiMjJhMGFhODUxMzQwNTM4MDhjNDVlNmQ6ei0xMTE3LTMyNzczOnd3dy5vdXJkaWFiZXRpY2xpZmUuY29t" style="color: #666666;" title="Powered by Text-Enhance">insulin</a> and insulin pumps provide keys for better management, but they also provide a clear and present danger at all times.</span></div>
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<span style="font-family: Calibri;">We have to be vigilant.</span></div>
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<span style="font-family: Calibri;">We look into the eyes of our children and we love them with a bright tenderness. We want more than anything for them to live a life <a href="http://www.ourdiabeticlife.com/2012/05/we-are-d-mothers.html#" id="_GPLITA_4" in_rurl="http://www.textsrv.com/click?v=VVM6MjAwNDc6MTQ4OTpmcmVlOmNhZmY2N2M5MWYxZDQzOTg4ZDc0NTFmMDZjMjEyMjhjOnotMTExNy0zMjc3Mzp3d3cub3VyZGlhYmV0aWNsaWZlLmNvbQ%3D%3D" style="color: #666666;" title="Powered by Text-Enhance">free</a> from restrictions, free from prejudice, free from complications, free from emergency rooms and hospitals.</span></div>
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<span style="font-family: Calibri;">We feel a responsibility well beyond any bounds of normalcy. We do not want to live a life of regrets. One day we will need to look into the eyes of our adult Type 1 Children and we want more than anything to say...</span></div>
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<span style="font-family: Calibri;">"I did my best."</span></div>
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<span style="font-family: Calibri;">The mothers of Type 1's spend every day racked with guilt. Every <a href="http://www.ourdiabeticlife.com/2012/05/we-are-d-mothers.html#" id="_GPLITA_1" in_rurl="http://www.textsrv.com/click?v=VVM6MjA1ODk6MjAxOmJsb29kIHN1Z2FyOjcyOTc4NTBlOGZiM2QyYTUzNmFjOGUwZDY4N2NjY2NlOnotMTExNy0zMjc3Mzp3d3cub3VyZGlhYmV0aWNsaWZlLmNvbQ%3D%3D" style="color: #666666;" title="Powered by Text-Enhance">blood sugar</a> number pierces our heart. We feel responsible for every high and every low.</span></div>
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<span style="font-family: Calibri;">An argument can be made that diabetes is responsible for every one of those numbers, but in our eyes...whether a reasonable notion or not, we feel they are a reflection of our efforts.</span></div>
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<span style="font-family: Calibri;">We may not always admit it to you, or to ourselves...but we take those numbers personally.</span></div>
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<span style="font-family: Calibri;">The A1C isn't called the mommy report card for nothing.</span></div>
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<span style="font-family: Calibri;">We do not sleep. That is a choice. We choose to keep a close eye on the numbers while the world takes a break. We don't take breaks. We know that waking up with a off number can domino to the rest of the day. </span></div>
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<span style="font-family: Calibri;">We know that pancreases sputter.</span></div>
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<span style="font-family: Calibri;">We know the soccer game from 5 hours earlier can affect the nighttime numbers.</span></div>
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<span style="font-family: Calibri;">(Yet we urge them to play.)</span></div>
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<span style="font-family: Calibri;">We know that Pizza can wreak havoc hours after consumption, and w</span><span style="font-family: Calibri;">e know that Chinese food for dinner means a sleepless night for us.</span></div>
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<span style="font-family: Calibri;">(Yet we delight in serving them their favorites anyway.)</span></div>
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<span style="font-family: Calibri;">We know that diabetes never sleeps. That is why we don't either.</span></div>
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<span style="font-family: Calibri;">We know that a 200 can turn into a 52 in 30 minutes flat.</span></div>
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<span style="font-family: Calibri;">We know that on field trip days our children may spike with excitement, or bottom out from activity.</span></div>
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<span style="font-family: Calibri;">We know nothing is for sure.</span></div>
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<span style="font-family: Calibri;">So we check, and constantly ask our children how they are feeling...and we hover...watching every move...looking for changes in our children's faces...changes in their gait...tiny beads of sweat on the back of their necks...we know the signs of lows. We know our children better than anyone else.</span></div>
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<span style="font-family: Calibri;">We love hard.</span></div>
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<span style="font-family: Calibri;">We try hard.</span></div>
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<span style="font-family: Calibri;">We cry hard.</span></div>
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<span style="font-family: Calibri;">We hug hard.</span></div>
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<span style="font-family: Calibri;">We hope hard.</span></div>
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<span style="font-family: Calibri;">We stress hard.</span></div>
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<span style="font-family: Calibri;">We are hard on ourselves.</span></div>
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<span style="font-family: Calibri;">We are D mamas. </span></div>
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<span style="font-family: Calibri;">Don't judge us because we fret over the details. To us...Our Diabetic Life is all about the details.</span></div>
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<span style="font-family: Calibri;">We are 100% responsible for the well being of children we love more than anything on this blessed green earth.</span></div>
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<span style="font-family: Calibri;">No, we will not back off.</span></div>
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<span style="font-family: Calibri;">No, we will not calm down.</span></div>
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<span style="font-family: Calibri;">No, we will not stop making noise.</span></div>
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<span style="font-family: Calibri;">As mothers, we know that our children are special. Diabetes makes them stronger. It makes them resilient, responsible, amazing. It gives them a sense of humor. It makes them grow up too fast, and let's them spread their wings too slow.</span></div>
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<span style="font-family: Calibri;">We wish we could take away the pain. </span></div>
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<span style="font-family: Calibri;">We wish it were us.</span><br />
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<span style="font-family: Calibri;">We are warriors.</span><br />
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<span style="font-family: Calibri;">We are D Moms.</span></div>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com3tag:blogger.com,1999:blog-6994229962654491290.post-49788103834785037302012-05-14T08:48:00.000-06:002012-05-14T17:03:43.331-06:00Diabetes Blog Week 2012<span style="color: magenta; font-family: Georgia, 'Times New Roman', serif;"><b>Meet <a href="http://www.bittersweetdiabetes.com/2012/05/third-annual-diabetes-blog-week.html" target="_blank">Karen</a>, she is a lover of knitting, her cat, and her husband. She doesn't work in the medical field but is very qualified to give advice in the field of Diabetes because she, like Miss Sydney, lives with Type 1 Diabetes. Three years ago she had an idea, lets have 1 week out of the year where anyone who blogs about diabetes in any capacity can unite together and write a blog a day for 7 days. Each day comes with a new topic to write about. The idea is that bloggers can jump from blog to blog to read a variety of opinions on specific topics for a week. We can learn new ideas, tricks, or just get support from other bloggers who live with the struggles with this disease. Monday's topic is to meet new friends. So, I'm going to share some of my favorite blogging buddies I've met over the past 4 years since Sydney's dx. This is not a difficult topic for me because I already have a list of blogs on the right hand side of the page. Scroll down til you see "Naturally Sweet Blogs for Kids with Type 1 Diabetes." I look forward to meeting new friends this week and gaining a deeper knowledge about this disease that plagues Sydney's body 24 hours a day. 7 days a week. 365 days a year. Til death may they part. </b></span><br />
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<span style="color: magenta; font-family: Georgia, 'Times New Roman', serif;"><b>If you haven't yet, meet my girls, from left to right is Morgan (6), Hadlee (17 months), Sydney (8) and a Type 1 Diabetic since she was 4. </b></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDtsUw-WZllfENjBER0eveuLTViuLOmkp-lZ2nUKp9C3-ETLv-kOFkO82IF2wY6pkHGo1maPgzAf2kiEvo4d_7YwPX9d9Y2bOlufYbriYzCciZitxKtEbhIX9IbVOlZM9kKnL8ZjQWBnc/s1600/The+girls+May+2012.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDtsUw-WZllfENjBER0eveuLTViuLOmkp-lZ2nUKp9C3-ETLv-kOFkO82IF2wY6pkHGo1maPgzAf2kiEvo4d_7YwPX9d9Y2bOlufYbriYzCciZitxKtEbhIX9IbVOlZM9kKnL8ZjQWBnc/s320/The+girls+May+2012.jpg" width="320" /></a></div>
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<span style="color: magenta; font-family: Georgia, 'Times New Roman', serif;"><b>I like to use music and make videos to tell a story and touch people's hearts. I have done that with Sydney and am sharing one such video below. Take a peek. Feel free to share.</b></span> </div>
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<b><span style="background-color: white; color: magenta; font-family: Georgia, 'Times New Roman', serif;">On that note, bloggers everywhere, welcome to</span></b><br />
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<a href="http://www.bittersweetdiabetes.com/2012/05/third-annual-diabetes-blog-week.html"><img border="0" src=" http://farm8.staticflickr.com/7233/7148526121_1c16b0db45_o.gif " /></a> </div>Shamae (Ghost written by Loren her hubby)http://www.blogger.com/profile/14642220903846468776noreply@blogger.com2