Monday, April 7, 2014

Revamping Syd's Video

Well, I decided that after 5 years, Syd's Type 1 video probably needed revamping. And so I am setting out to update the video and make it a little more current. I hope to just do some photo changes and add a couple new videos. Can't wait to post the new video soon. If any of you have any suggestions of things to change, please let me know.

Wednesday, February 12, 2014

The quarterly A1C, aka the good mommy and daddy report

For anyone new to the world of diabetes, you may have heard of the term A1C and wondered why it was important to get since we test blood sugars multiple times everyday. Isn't that good enough to know if my child's blood sugars are staying in a healthy range? Not necessarily.

Let's say that you check your child's blood sugars consistently each day at the same time, during those times they are always within or near your target range so you figure everything is going great. If your child is on an insulin pump you know that basal rates vary dependent upon the time of day. So what about those in between times when your not checking their sugars? What's really happening during that time? An A1C can help to answer that question.

What the A1C does is average your child's blood sugar over time. Our bodies replace our blood cells about every 3 months. During that time sugars get stuck to the blood cells. High blood sugars result in more sugar sticking to the cells, low blood sugars means less sugar sticks to the cells. The A1C gives you an average of what a person's blood sugar levels were over the course of about 3 months. This can be very useful information for a parent of a type 1 child. Although we try to avoid low blood sugars, which can have immediate consequences, we also want to avoid high blood sugars over time which can lead to long term damages to our children's health.

A target A1C for most kids is between 7-8. This translates into an average blood sugar between 170 to 205, dependent on the chart your reading and the lab results. Keeping your child's blood sugar within the target range will help to reduce the risk of long term damage. It's also a good idea to speak with your doctor or diabetes educator on what the results mean individually. If your child wears a pump, the doctor or educator can usually download your pumps history to give an overall picture of the results. Was the A1C good because your child had lots of really low readings to counteract the high ones, or did they actually have a really well averaged quarter. It also allows for your doctor to make possible corrections to your child's basal rates if necessary.

Overall the A1C is a very important part of managing your child's diabetes. Although it might not always be the first thing on your mind to do, make sure your write it on the calendar so you will remember.

That being said I am happy to report that after several not so great numbers, 8's and 9's, Syd's latest numbers came in at 7.3%. We couldn't ask for a better number. I think her mom in heaven has been working hard to keep her little girl healthy.

May all of you have similarly happy results.    

Sunday, January 19, 2014

3 months later

Tomorrow will mark 3 months since the passing of Shamae. While I had a little time I wanted to update you on the family.

Overall we are all doing well. The girls miss their mom and express that sometimes, but on the whole are doing very well in continuing on with life.

Hadlee is now 3 years old. She is active as ever. She loves to be doing whatever the older sisters are doing which sometimes drives the older ones crazy. If I had a nickel every time I heard "Hadlee is bugging us Dad" I would be able to retire now. She likes going to daycare most days. I am glad that it will only be a temporary situation and that she will be able to be at home come the summer time.

Morgan is 8. She is very excited to be baptized coming up in February. She is very sweet, but also has her well known feisty streak. She is doing great in school. She is also now in piano and gym. She loves doing both and does very well in her classes. Her favorite thing now is anything Disney Frozen. She knows all the songs by heart. It is very sweet when her and Syd sing together. They are very good.

Sydney is 10. I have to reign her in on how boy crazy she is on a regular basis. She loves reading all the latest teen gossip magazines and watching internet videos of all her favorite teen stars. She is doing great in school, except the occasional struggles with math. I'm investing early in large stocks of ammunition to keep all the little boys away. On a normal day there is at least 2-3 boys fighting for her affection. She is also in piano and gym and loves to do both.

I myself am also doing very well. I manage to get the kids fed, dressed, hair done, and off to school on time each day. As well as making sure the house stays picked up. Well as best as you can with 3 girls running around the place. I miss Shamae at times, for the woman she use to be before her health issues, but also take comfort in the fact that she no longer has to be in pain or live in a body that doesn't do what she wanted it to do. Being a single Dad can be a bit of a challenge sometimes, but I am very happy to have my girls. I also know that someday I won't have to do it alone and that the girls will have someone they can look to as a mother. The most important thing is to be happy with the moment we live in and to find those things that will lead to continuing and greater happiness.

Thank you for all the kindness we have been shown. It has help to lift our family and to continue on.

Honoring Shamae. Aberdeen Girls Basketball.

The Aberdeen Girls Basketball team will be presenting a plaque to the girls and I on Jan. 22 at 6:30 P.M. at the Aberdeen High School Gym. I just wanted everyone to know about this event. I really think it is sweet of them that they are paying tribute to Shamae. She was an amazing team member back in high school and was able to touch so many people. I would invite anyone in the area who would like to attend to make sure they come.

Sunday, December 22, 2013

It wasn't until this morning that I remembered that Shamae had written a poem for her grandma Ruth several years ago following the passing of you grandpa Keith. I realized that now would be a great time to post this on behalf of Shamae as it applies to her now as well.

Together for Christmas ©
The tears in your eyes I know you can’t hide,
In front of our family, I've seen how you've tried.
You want to be strong, but the ache is too great.
When I passed on, I saw your heart break.

But please don’t cry, no don’t shed a tear.
You don’t understand; the plan is not clear.
You see the side where I’m dead and gone.
But don’t you worry, it won’t be long,
Till your eyes are opened and you see the light--
You see, I’m in Heaven where it stays very bright.

Christmas is coming and I know you are scared,
Because this is a holiday we always have shared.
I miss you too and in my heart there’s an ache,
Because I won’t be around to make this year great.

But you’ll be surrounded by family and friends,
Who love you dearly and will be there to lend,
A shoulder to cry on or just share a smile.
They will be with you and stay for a while.

But I want you to know that I’ll also be there,
This holiday season we still get to share.
Although I know you cannot see,
I'll be sitting beside you with our family.
My hands on your shoulders, I’ll give you a squeeze,
As I sit beside you around our Christmas tree.

So please don’t cry, no don’t shed a tear,
Because I will be with you for Christmas this year.
By: Shamae Lyon

Sunday, December 15, 2013

Merry Christmas

It's Christmas time. Wishing all of you and your families a happy and safe season. And for all our many diabetic friends out there, here's wishing the holidays bring you normal blood sugars and healthy children.

Tuesday, November 19, 2013

Well, tomorrow it will officially be 1 month since Shamae passed away. For all of those who have been following her blog, I want to thank you all for the support and friendship that you have shown her and our family over the years. I am not even close to the writer that Shamae was, but I do plan to continue to keep her blog going and try and post at least once a month or so.

She was a big supporter of the type 1 community and a great resource. Although I feel I do a good job taking care of Sydney, I don't know that I will be able to fill the shoes that she left in that area. If you have things that you think would be good to link or post please let me know. I still want people to be able to come and feel connected.

Thanks again for all of the love and support that you have shown us this last month.

Saturday, January 12, 2013

Facing Another Diagnosis--The eye of the hurricane

It hasn't been too big a secret that our family has been put through the ringer again and again. I don't know why yet but I have to have faith that someday all the heartache and silent tears will be accounted for and I will understand them. But, for now, I weep privately and have almost trained my eyes to never water in public. Public is an ambiguous term of people who just don't get it. They may want to. They may be your best friends and want to help but there comes a time when even they can't know the tumult that rocks your world.

 Since Sydney's dx on Feb. 25, 2008, we live in a hurricane zone. The hurricane is composed in insulin to carb ratios. Hurricanes based on low blood sugars that cause seizures. Hurricanes so unpredictable that we can log a very high 450 number in a daughter filling up with toxins from DKA and we pump insulin into her in order to rid her body of the deadly toxins, we fight and fight to pull her back from the brink of DKA and eventual death only to have another hurricane swing in unannounced  The next time we might be holding Sydney prisoner to severe lows where she shakes uncontrollably. She cries. She hurts. She has rapid breathing and clammy skin. Often an uncomfortable tachycardia heart rate  She is now facing death from low blood sugar. SO we fight and fight. We use all the knowledge we have to fight her off he lows. Away from the seizures and potential brain damage. We battle this damn hurricane all the time. Sometimes the hurricane calms and feels more like a breezy day at the beach and out then of nowhere the hurricane comes in and tries to claim Syd's life. We try to always be on our toes. We try to always watch because everything is so unpredictable.

Morgan has been part of a trial study for siblings of Type 1 Diabetics. It measures the antibodies in her blood. We shouldn't have any.  The presence of antibodies could mean an autoimmune response has been triggered and the body isn't producing insulin properly. The body is killing off islet cells in the pancreas and slowly blood sugars rise until a diagnosis is made. It's a tough diagnosis. There is so much to learn about this disease. We have been at it for nearly 5 years and I don't know everything I need to know. For whatever reason, Morgan's body is showing symptoms of developing this disease. We randomly check her blood sugars and they have been increasing. Fasting blood sugars should be under 100 and hers haven't been under 100 in a while. The past couple months we have really backed down on checking her sugar because she hasn't been diagnosed and if, eventually, she is diagnosed, she will be checking it often enough on her own.

So we wait. We watch. We are trying to keep track of symptoms but there isn't anything we can do to stop it if it is a pending diagnosis. Every year we raise money for JDRF and hopefully at a future date...sooner rather than later...we can find a way to stop or reverse islet cell damage.  In the meantime, we have our hurricane and we do our best to manage it. I realize this post talks about the emotional toll of this disease and  at a further date I might make a post about the financial toll of this disease. :) Thanks for reading.