The past few days, I'm not sure why, I've been replaying Syd's diagnosis over and over in my head. It was February 25, 2008. It seems like a lifetime ago and, at the same time, just like yesterday. I remember I almost cancelled her appt that morning. It was at 9:30 a.m. I remember rolling over in bed at about 7 a.m. and telling Loren I was worried her doctor was going to think I was some crazy, paranoid mom because I was worried that my kid was drinking a lot of water. Now, in my defense, it was an obsessive amount of water--along with some other worrisome issues--but still. I had no idea what I was facing, I just knew something wasn't right.
I remember the doc asking for a urine sample. I remember him coming to tell me she had a lot of glucose in her urine and he was pretty sure she had Type 1 Diabetes and a blood sugar check would confirm it. The nurse came in. I remember seeing the number come up on the glucometer...517. I was looking at it upside down. My mind registered the number but I was trying to tell myself I was reading it wrong. Either way, the number started with a 5 or a 7...I tried to tell myself the 5 was a 2 but I still knew all of those numbers were higher than they should have been.
The doctor came in and said she had Type 1 Diabetes and she couldn't outgrow it. He reassured me that we didn't do anything wrong but in my head I was trying to think of everything I may have done to cause this disease. I remember trying to justify what she had for breakfast. Toast and yogurt. I told him we ate healthy. It seems silly now but I felt like I had done something wrong. I felt like I needed to tell him that I didn't feed her sugar on a spoon with a dash of honey for breakfast. I didn't want him to think I was a bad mom. He just smiled and said I didn't do anything wrong but this was a serious disease and Sydney would have to be admitted to the hospital right now. I couldn't go home and pack a bag. We had to go straight there. (The clinic and hospital are connected by a sky walk so that was convenient.)
Through tears I text Loren that she was being admitted to the hospital. Looking back I probably should have called him but I knew if I tried to say those words they wouldn't come out. We went to the billing office to get pre-approval for the hospital stay with our insurance. One of the office ladies saw me crying and my 4 year old, who still didn't know what was going on, watching her mom. She offered Sydney smarties. Another lady who was helping us jumped up and said, "Oh she can't have those right now." The other lady sat down looking foolish. I cried harder. I had no idea what to expect. I didn't know how to manage this disease. I knew nothing about it other than my kid couldn't have some stupid smarties. I was scared.
At that point I was all alone. Within a half hour Loren found a babysitter for Morgan and was at the hospital and we started to learn about this new trial. I tried calling my mom but I couldn't choke the words out. I was just crying into the phone. Loren saved me there and told her what was going on. My mom was at the hospital within the hour. She also made phone calls for us so they didn't have to listen to a blubbering Shamae on the other end.
I remember coming home and trying to figure out how to finish my final semester in college and deal with this new diagnosis. It was so overwhelming. I remember thinking this will never go away. It's not like some nasty virus that sucks for a couple weeks and then it gets better. It. Never. Quits. But over the past year and a half things have gotten easier. I wouldn't say they are ever easy because each day is filled with something...but it is easier. The outpouring of love and support is there at every bend in the road. If I have to go through this, I couldn't handpick a better support system. Despite the diagnosis I did go on to finish my degree that semester. It was a great day!
Tonight Sydney's sugar was 297 at dinner--too high---but sometimes that happens on site changing days. The odd thing was within 45 minutes she had plummeted all the way down to 40. I gave her 13 carbs of juice. Checked her 15 minutes later. She was 89. Checked her 20 minutes later. She was dropping again and in the 70s. So I guess it will be "one of those nights." My other Type 1 mom readers know exactly what those words mean. That is a great part of this blogging world. I haven't met most of my readers who deal with T1 Diabetes, but I know they are there. I know they understand. It's wonderful.
So, with that I'm going to end this reminiscent blog post. Of course, for your pleasure, I will add some pics of Miss Sydney. If you want to read the whole post from right after she was diagnosed, be my guest. Click HERE for that blog. Sometimes I go and read my posts from the months before diagnosis and try to remember what it was like before diabetes. Almost as if I'm trying to mentally prepare myself for what is coming, obviously that sounds silly but my blog was up and running before diagnosis and sometimes it's fun to go back through those pre-diabetes days.
~These next 2 pictures were taken the day before she was diagnosed. In my head it still makes me kind of sick to think she was at this party for Loren's mom. Eating sloppy joes. Cake. Soda. The works. And she had no insulin compensation. Granted we had no idea this meal probably sent her sugars sky high that night. But hindsight gives me grief over it.