Well I don't have the energy to put a nice, wonderful post together. I guess that's why I've been lacking in my posting lately...and my responding to all my favorite blogger's blogs. :)
I've felt like I've emotionally checked out these past few days. You know what I mean...where you put on "the face" just to get through the day. I guess that makes it sounds more depressing that what I mean but it's been a rough week. Syd's numbers are all over the place. They have been consistently in the 3 and 400s. We give her insulin with her pump and she climbs even higher. Her ketones have been off the charts high. I can't thank her CDE Nancy enough for letting me bug her all weekend (even last night at 11 pm). I just don't know what to do. You get in a rhythm with this disease and then it throws you for a loop. It's like fighting a never ending war. 2 nights ago our CDE wanted us to give her an injection of insulin instead of using her pump. It brought her numbers down and all was well...until that active insulin wore off then she climbed high again. So what is happening is her pump isn't lowering her numbers but injections do. We are blessed with an awesome pedi clinic that has one of the pediatricians available 24/7. I have been on the phone with them as well and last night about 11:30 they told us to disconnect her pump completely and go back to injections for a few days to see if we can get things under control again. The doc called in a prescription of Lantus and Loren picked it up at midnight last night. Sooooo we are doing injections with every meal again.
I think you forget how flexible the pump makes your life. It is so easy to correct a high...you just push buttons! Now it's a big, drawn out tantrum because each meal and each correction means another shot. But Syd is a trooper. I can't remember the last time her numbers have been THIS out of whack. Mostly high. But today at 4 she was 327. I gave her a correction of insulin and an hour and a half later she was 40. Hopefully we get things "fixed" soon. Thanks for all the well wishes on facebook. I'll update again later.
5 days ago